http://www.rarenewengland.org/

Coordinating Resources for Patients and Families with Rare and Complex Disorders

http://epilepsygenetics.net/2017/02/14/being-informed-about-informed-consent/

Informed consent for genetic testing

https://www.youtube.com/watch?v=kOcwOm3dZko

Informative video about managing seizures in children

http://www.tsalliance.org/index.aspx 
Click on "For School Issues" - numerous excellent publications to share with your child's teachers

http://nichcy.org/
State resource sheets provide all special needs organizations in the state - helpful contact information which is kept up to date.

http://www.doe.mass.edu/
Massachusetts Department of Education has a lot of information for parents about the special education process as well as parent's rights.  Other states have similar sites.

http://fcsn.org/index.php
Federation for Children with Special Needs.  Massachusetts parent advocacy and information group.  

http://www.spanmass.org/
Lists all of the educational advocates and special needs lawyers in MA. 

http://www.autismspeaks.org/
Provides great resources and suggestions including apps for children with autism.

http://www.dlc-ma.org/
Disability Law Center.  They will provide low cost or free legal advice for children with special needs.

http://www.ncld.org/
Provides excellent information about learning disabilities and how to support a child with learning differences.

http://www.ldonline.org/
The world's leading resource on learning disabilities.

http://phdinspecialeducation.com/special-needs-twitter-accounts/
A list of exceptional twitter accounts covering special needs.