Family to Family Program
Please contact Mrs. Karin Sullivan, via e-mail at firstname.lastname@example.org or by phone at (508) 697-1527
TSC Family Guide
A great family guide for activities in the Boston area for out of state patients.
Tuberous Sclerosis Alliance
The Tuberous Sclerosis Alliance (TS Alliance) is a national organization dedicated to finding a cure for tuberous sclerosis while improving the lives of those affected.
Online Discussion Groups
Discussion groups offered by the TS Alliance for individuals and family members affected by tuberous sclerosis.
Teacher's Guide to Educating a Child with Tuberous Sclerosis Complex
Created by the TS Alliance to inform teachers about the educational needs of individuals with tuberous sclerosis.
NINDS Tuberous Sclerosis Information Page
A fact sheet about tuberous sclerosis created by the National Institutes of Neurological Disorders and Stroke (NINDS). .
The Tuberous Sclerosis Association (UK)
UK charity that supports individuals, promotes awareness, and seeks the causes and best possible management of tuberous sclerosis.
Genetic Alliance Information Sheet on Tuberous Sclerosis
A nonprofit committed to transforming health through genetics by creating partnerships through patients, families, organizations, corporations and government agencies.
Federation for Children with Special Needs (Massachusetts)
The Federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families.
Autism Consortium Resource Database of Autism Related Programs and Services
Listing of resources for families and clinicians in the New England area to facilitate greater access to services and programs related to autism spectrum disorders.