Tuberous Sclerosis Complex Resources

Learn more about family education and support resources based in New England and nationally

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Tuberous Sclerosis Alliance

The Tuberous Sclerosis Alliance (TSC Alliance) is a national organization dedicated to finding a cure for tuberous sclerosis while improving the lives of those affected.

tscalliance.org

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NINDS Tuberous Sclerosis Information Page

A fact sheet about tuberous sclerosis created by the National Institutes of Neurological Disorders and Stroke (NINDS).

ninds.nih.gov

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Federation for Children with Special Needs

The Federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families.

fcsn.org

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The Tuberous Sclerosis Association (UK)

UK charity that supports individuals, promotes awareness, and seeks the causes and best possible management of tuberous sclerosis.

tuberous-sclerosis.org