Skip to the content.

Tuberous Sclerosis Complex Resources

Learn more about family education and support resources based in New England and nationally.

NINDS Tuberous Sclerosis Information Page

A fact sheet about tuberous sclerosis created by the National Institutes of Neurological Disorders and Stroke (NINDS).

Federation for Children with Special Needs (Massachusetts)

The Federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families.

Online Discussion Groups

Discussion groups offered by the TSC Alliance for individuals and family members affected by tuberous sclerosis.

Genetic Alliance Information Sheet on Tuberous Sclerosis

A nonprofit committed to transforming health through genetics by creating partnerships through patients, families, organizations, corporations and government agencies.

TSC Family Guide

A great family guide for activities in the Boston area for out of state patients.

Teacher's Guide to Educating a Child with Tuberous Sclerosis Complex

Created by the TSC Alliance to inform teachers about the educational needs of individuals with tuberous sclerosis.

Tuberous Sclerosis Alliance

The Tuberous Sclerosis Alliance (TSC Alliance) is a national organization dedicated to finding a cure for tuberous sclerosis while improving the lives of those affected.

The Tuberous Sclerosis Association (UK)

UK charity that supports individuals, promotes awareness, and seeks the causes and best possible management of tuberous sclerosis.